This project is aimed at learning how surrogates of patients with disorders of consciousness understand the consent process when enrolling the patient in research and decide whether or not to participate. We are interested in understanding their decisional process and risk for holding a therapeutic misconception. The project utilizes the MacArthur Competence Assessment Tool for Clinical Research (MacCAT-CR) to assess the surrogate’s decision making process to consent the patient to research. This oral, structured interview will gauge the degree to which they understand and appreciate the significance of information disclosed during a consenting process for a hypothetical clinical research study.

PI: 
Fins, JJ
Funded By: 
The Buster Family Foundation

Research Study Status :